How easily adjusted is your daily routine? Mine takes a nose dive with the slightest change of plans. My lease is up in July, the week after our honeymoon. So I began moving things into my fiancé’s apartment. I tried living in between places to pack and unpack, and to avoided living together ...

http://howilivelaughlovewithcf.blogspot.com/ If you've been following the news at all lately (which I rarely do because it's usually depressing), you may have noticed a story about a ten year old girl, Sarah, with cystic fibrosis who's in need of a double lung transplant. Thankfully, yesterday Sa...

I am going to change it up a little bit for this blog post. This topic is something that everyone can relate to and maybe when you are going through a life stressor or worry you will think back to this post. I actually previewed this blog with the wife before I decided to write it and she said “...

We have been getting free vitamins sent to us through the CF Careforward program. Now that Source CF is no longer an option, they have been sending the Aqua ADEK brand. My daughter will not take them. She will take the vitamix drops so I will need to pay and order those on my own. Do most of...

All, I know that I already posted this not too long ago, but unfortunately my venue backed out last week and we have been scrambling to land a new one. Here are the details. Standup for a Cure - Laugh Hard & Breathe Easy is a benefit for Team TLC. Team TLC is for Terry Lee Carroll who is c...

Cystic Fibrosis Research, Inc. 501(c)(3) is hosting their 26th National CF Family Education Conference that aims to provide support and education on the latest cystic fibrosis research and practices through a series of presentations, panel discussions, and support groups hosted by cystic fibrosis ex...

Ok, I'm a nerd and I get a "word of the day" emailed me to help increase my vocabulary. It also explains the Etymology of the words which I find very interesting. Today's word was Rx and I have always wondered where that abbreviation came from. I thought some of you might find this interesting...

My junior year of high school ended on Thursday (June 6th), and I am officially a senior! This year has been crazy, mainly with being out of school 120+ days because of gasatroparesis issues. I have my schedule for senior year planned, I'm going to be using half my school day as an SIA (student inst...

Sarah Murnaghan's mother Janet and father Fran are looking for any other kids in Sarah and Javier's position so they can help fight for those kids too. There are about 12 in US but because of HIPAA names can not be released. She is hoping to find them through association. Please quickly light up the...

It's not that I've always looked sick, the majority of the time, you could never tell I had any sort of illness at all. But I used to be so thin, especially before 3rd grade. I was probably 30-40 pounds underweight. My face was so tiny, you could see my ribs, I was basically skin and bones. I knew I...