I was so excited to get the Trio for my tobramycin treatments. Then I discovered what a pain in the buttski it is to keep the darn thing clean. I know some of y'all here use a baby bottle sterilizer for your PARIs. Can you use the Trio bits in there? Or is the metal head a problem? If yes, which ...

Hi there, I just started my second time using the Cayston. The first time, I didn't notice any side effects, but this time, my chest seems tight and a little achy, and like I can't get a deep breath. Maybe it is pure anxiety which I have from time to time. I focus too much on my breathing sometim...

Has anyone with CF driven cross-country? The last 3 times I've flown I've picked up something on the flight. So I figured my wife and I should just drive from Los Angeles to Boston to visit family. I haven't been home in 2 years because of the getting sick flying BS. I wanted to see if the trip was ...

Okay so i made a blog a few weeks back about the CFF and Rock CF charity team for the Disney World Tower of Terror run that is in October! I have a team of 20 for the 10 miler and a team of 20 for the 5k. Both of the events are on October 5th, the 5k is in the morning and the 10 miler is in the ev...

I have been using pure essential oils for everyone in my house. I have to say when I first tried them I had no idea how well they would work. I am blown away at how a mixture of lemon, peppermint, and Lavendar cleared my sinuses and took away my head ache. They are so pure only a drop does the trick...

Hello CF Fam! I have one ΔF508 and would LOVE to be used as a guinea pig! How could I get invovled? (My Dr.'s office hasn't collaborated with any trials, but I am TOTALLY willing to be used).

When our son was diagnosed with CF shortly after birth, the respiratory therapist gave us an orange AeroChamber (see at this website here: http://www.aerochambervhc.com/). After each use, we sterilized it in our Avent electric sterilizer at home and when on vacation we would put the chamber and mask...

Hey there everyone, I was curious if any of you have experienced hemoptysis with the Hypertonic Saline. I've been on it for years without any issues but lately it seems that it has been very irritating. I am now coming off of antibiotics, so I thought it was a good time to start it up again and s...

We are going on three days of hardly any solid food and increasingly small amounts of Pediasure 1.5. He doesn't have any symptoms of being sick and will not tell me why he won't eat. He just says "I no like food". I have tried Happy Meals, ice cream, popcorn, chips, cookies...nothing. He has a li...

Hi everyone, I take 7% hypertonic saline. Almost every CFer I have ever talked to says that HTS makes them cough up a storm and it's amazing and they clear so much. I literally do. not. cough. when I am inhaling HTS. I might cough once or twice, but they are pretty dry and non-productive. If I do ...