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Cystic Fibrosis Questions - Worried about having a child....
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Worried about having a child....
Jul 19, 2012 at 4:48 PM
I know I'm not planning on having a child any time soon but this has been a thought in my mind since I could remember... Now I'm a cyster so I have the gene for CF obviously... but if my husband is a carrier...does that give my child/children a higher risk of getting Cystic Fibrosis?? And how would I be able to support that, with all the problems I have myself I don't know if I'd be able to worry about a infant with the same or worse... ADVICE PLEASE! :(
Answers
Me having a child wasn't planned in fact it was a big surprise! But its the best thing that ever happened to me. Of course if you read some of my blogs/questions you will see I always reflect and get worried. But I love my daughter and she truly gives me a reason to live, My husband was not a carrier but being that the pregnancy wasn't planned, we would've had her either way. Obviously its a very personal decision but I cant imagine my life without my daughter.
Jul 24, 2012 at 2:47 AM
I'm pretty sure if u both have the cf gene there's only a 25% chance of r child having cf. I cud b wrong but I'm almost positive that's what my doc said....
Jul 22, 2012 at 9:46 PM
hi there! there would be a 50% chance your child would have CF if you have CF and your husband is a carrier. My husband and I are both carriers and our only child has CF. I have been pregnant three other times and lost the baby (nothing to do with CF) but I know something about dealing with the decision to have a child knowing "the odds". The answer I give will come from one place only...that of being a Christian. I believe that you will have the child and the life God wants you to have. You an worry about having a child with CF and then have a child with a completely unrelated disease that comes out of no where. You can have a child with CF that lives to be 99 and touches the lives of everyone he or she meets. Who knows? God does and He is kind and loving and really really smart. So focus on the fact that you nothing is a surprise to Him!!
Jul 20, 2012 at 6:14 PM
I feel like this answer could get very long, so if it does, I apologize in advance.

Yes, your child(ren) could have CF, depending on if your husband is a carrier or not. If he IS a carrier, there's a 50/50 chance of having a child with CF or having a child who is just a CF carrier.
If he is NOT a carrier, then you have a less than 1% chance of having a child with CF, but they will be a carrier because they'll get a copy from you. This question can be answered by seeing a genetic counselor and having your husband tested (either a cheek swab or a blood test). My husband was tested in January of this year, so I'm pretty familiar with all this stuff if you have any other questions.

As far as taking care of yourself and a child (CF or not), that's something you need to talk about with your husband. I'm not going to lie, it was a pretty big weight off my shoulders when I found out my husband wasn't a carrier because that meant for us we'd have a less than 1% chance of having a child with CF. But if he was a carrier, that was a decision that we would have to make - whether we wanted to take that 50/50 risk.

I completely understand your worry about taking care of yourself and a CF baby and I was very concerned about that too. That's why we chose to have my husband tested. Now that we know, we're able to move forward with trying to get pregnant, knowing we'll hopefully have a healthy baby. I know there are people on this site who have CF and their children have CF, too, so maybe they'll be able to answer that part better. In a way, I feel like having CF might help you take care of your CF child because in a way you know what they're going through, but at the same time, I'm sure it's very difficult.

Again, I could go on and on about this. Feel free to check out my personal blogs on this site - I've posted many titled "pregnancy journey", or my open blog: http://howilivelaughlovewithcf.blogspot.com/.
Jul 19, 2012 at 6:18 PM
I know the feeling, I have read in the questions somewhere about different ways to have a child and insure that they will be healthy. It is something you can talk with your doctor about when the time comes. In my questions I have quite a few responses to birth control, and testing for the recessive gene. If your special someone is a carrier, I think it's a 50/50 chance your child would have CF, if not, they will be a carrier of the recessive gene. Again though, with science taking leaps and bounds, you may be able to have a way around that. My boyfriend and I plan on adopting someday =) It is a hard topic though, one I've wondered about since high school!

take care!
Jul 19, 2012 at 6:07 PM
I worry about the same thing, Christina! You're not alone! I'd love to hear what others have to say about this and also get some words of encouragement to ease my mind (as well as others' I'm sure).
Jul 19, 2012 at 5:19 PM
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