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hi everyone I'm starting a support group for pre and post transplant patients. I had my double lung transplant on October 1, 2015 and since that day I wanted to help and giving out advice to other who are going into their surgery or are doing the pre transplant evaluation. my story is incredible ...

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I live my life by this motto. Because I live and breathe…fill in the blank. Anything can be written at the end of this sentence. This means anything is a possibility. I’ve not always viewed life in this way, but through maturity, experiences, gaining self-confidence, and finding my identity, I h...

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I finally left my c.f. clinic of 22 years. Horrible care lack of compassion or communication. I moved on to Boston where I have the best c.f. dr. Once the new year started I lost my secondary health insurance. All I have is my dad's commercial insurance and lost any chance of another secondary throu...

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I'm currently 29 and have worked full time for the last 10 years, I was very sick earlier in life but over came that for a fair amount of years. The last 3-4 years have been terrible for me, especially the last year of being sick most of the time. I'm thinking about maybe applying or seeking some so...

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Year of me
Lifestyle
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2016, as with any year, was full of many ups and many downs. From battling my first round of depression college-style (which, I've found, manifests itself in a much different way than depression when not in college) and falling a bit behind in school but picking myself back up to falling in love and...

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Just had to share with my fellow cystics, because I know you will all "get it" more than anyone else... Tonight, I am on cloud 9, because I totally killed it on the treadmill! In December, I had to do a course of oral antibiotics, because I was experiencing problems, and especially shortness ...

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As a person who had mostly mild manifestations for years, I hadn’t spent a lot of time dwelling on how I might experience the progression of Cystic Fibrosis as I aged. I was always able to be active with ease, I was adherent to my treatment plan, and I think I just believed that things would stay ...

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Hi my name is Jordan and I have a practically brand new hilrom 105 vest for sale it has the locking hoses and an adult medium vest included plus the travel case. the unit only has 4.6 hours on it ( practically brand new) $600 please email me with any questions. jdpascucci@gmail.com

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Hi Everyone, The Everyday Superman blog has been launched. Check it out for daily workouts, videos, articles, and guidance to help us fight this battle. Have a look ! No fees, or spam....or any of that garage. https://theeverydaysuperman.wordpress.com/ Thanks Tim

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Hi Everyone, Coming Soon is the Everyday Superman blog, which will feature daily workouts, articles, videos, and workout guidance for those who battle CF. It's going to be amazing!!!

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