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Hello! I am a mother of 2 and we are trying to conceive our 3rd baby. I have been on Kalydeco since it was FDA approved for my mutation 3 years ago. It has been a life saver and miracle for my family. I so very desperately want another child but I am not willing to stop taking my kalydeco. My qu...

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Orkambi
Medicines
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My daughter started orkambi in 2015 with little side effects. She's very healthy, so the only real change we noticed was that she went from being considered diabetic, back to pre diabetic. She had an insurance change at the beginning of the year and to get her orkambi refilled, we had to have a prio...

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25 Views 1 Answers
I was switched from using the TOBI podhaler to nebulized Bethkis. So I have 3 boxes of unused TOBI with unopened podhalers. I was told that someone on here might know how/where to sell them to someone in need. Can someone tell me more about this?

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470 Views 0 Answers
Hey guys! So I've had a pretty obvious sinus infection for a couple of weeks now that my pulmonologist has referred me to an ENT for. Other than the obvious annoying symptoms (runny nose, headaches, cough), I feel fine and I'm able to go to the gym, see my friends, etc. But along with the typical gr...

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16 Views 0 Answers
Hey guys! So I've had a pretty obvious sinus infection for a couple of weeks now that my pulmonologist has referred me to an ENT for. Other than the obvious annoying symptoms (runny nose, headaches, cough), I feel fine and I'm able to go to the gym, see my friends, etc. But along with the typical gr...

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194 Views 1 Answers
Anybody try this? https://www.salinetherapy.com/?gclid=CO6C3euVutQCFUSSfgod2EcODQ

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Reflux or something else?
Food and Nutrition
155 Views 0 Answers
My 5 yr old with gtube experiences weird tummy pains and vomiting 2x/year for a week or so. He's on daily probiotics and takes Zantac and Prilosec for reflux. Vomiting occurs an hour or so after a feed so it feels like reflux over delayed emptying to me, but not sure. He was put on delayed gastric m...

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LAUREN MELISSA KELLY SCHOLARSHIP PRESENTED BY: UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION DEADLINE: June 30th 2017 WHO MAY APPLY: Adults with cystic fibrosis who are pursuing career certifications, associates, and bachelor’s degrees Award: $1,500- $2,500 Application and In...

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Cinnamaldehyde
Clinical Trials
319 Views 1 Answers
I read about the effects of cinnamaldehyde on breaking down the biofilm(s) that essentially protect some gram positive strains of bacteria. Some of them include bug I have like Psuedomonas Aeruginosa, and others. Biofilms act as a sheild for the bacteria against the inhaled antibiotics we take ...

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183 Views 1 Answers
Most of us hopefully have good times to experience and remember during those not so good times. Many of my good times are from really simple pleasures such as getting up early to see the sun rise and morning bird song. Right now we are doing a lot of landscaping in our backyard with new shrubs a...

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