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Tips for CF Parents-
Provides tips and resources for parents of children with CF. Lisa C. Greene is the mom of two kids with CF, a parent coach and co- author with Foster Cline MD of the award-winning Parenting Children with Health Issues.
Parenting Children With Health Issues-
Free audio, articles and other resources to help parents discover how to raise happy, healthier kids. Based on the popular Love and Logic ® parenting program created by Jim Fay and Foster Cline, MD (loveandlogic.com).
Jerry Cahill (50+) shares stories on how he, and others with cystic fibrosis, are LIVING BREATHING SUCCEEDING with CF. The podcasts consist of interviews with teens and adults with CF, parents and caregivers, where they discuss such topics as exercise, nutrition, careers, marriage, starting a family, lung transplants, and CFRD.
Cystic Fibrosis Foundation-
The Cystic Fibrosis Foundation (CFF) provides information about living with CF, treatments and research. The CFF assures the development of the means to cure and to control CF and improve patient’s quality of life.
Club CF is an online “club” for individuals with CF of various ages who are LIVING, BREATHING and SUCCEEDING, and for caregivers who are the true warriors in their support and fight against CF. CLUB CF features individuals with CF who are an inspiration to the CF community.
Boomer Esiason Foundation-
The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with volunteers to heighten awareness, education and the quality of life for those affected by CF.
An online community for those living with cystic fibrosis. A place for motivation, inspiration and connection to the CF community.
Cystic Fibrosis Research, Inc.-
is a community of families, professionals and volunteers committed to funding cystic fibrosis research, providing educational and personal support and improving the quality of life those with CF and their families.
Cystic Fibrosis Lifestyle Foundation-
CFLF provides avenues toward healthy and active lifestyles through recreation, thereby educating adolescents and young adults with CF on psychological, social and emotional connections between lifestyle and health.
Blooming Rose Foundation-
The Foundations’ mission is to provide social services, positive contacts and hope to families immediately after diagnosis.
Cystic Fibrosis Worldwide-
Cystic Fibrosis Worldwide (CFWW) is dedicated to improving quality of life and life expectancy for persons living with cystic fibrosis globally.
Lets Rock Cystic Fibrosis-
Letsrockcf.org is where all of your Rock CF Foundation news and events are posted! The Rock CF Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis. Help us Rock CF!
An educational site that offers information and support for those living with or caring for someone with cystic fibrosis. It is designed to help you work more closely with your Care Team, learn about treatment options, and provide interactive educational resources.
Travis Flores Children's Foundation–
An organization dedicated to providing an essential technological need (Netbooks and laptop computers) to chronically ill children and young adults, including CF patients, who endure frequent hospital stays.
is a full service retail pharmacy serving cystic fibrosis patients nationwide. The pharmacy not only provides a full line of retail products and supplies, but they also compound specialty inhaled medications, distribute nebulizers with eFlow technology, and offer expertise in reimbursement, patient care, and pharmacy.
United States Adult Cystic Fibrosis Association Inc.(USACFA), is a non-profit, 501(c)(3) organization, run by 12 volunteer Directors who all have CF. Since 1990, USACFA has published a quarterly newsletter, CF Roundtable, offering hope, support, and news in the world of cystic fibrosis.
Sharktank Research Foundation-
Sharktank Research Foundation is a non-profit medical research organization dedicated to accelerating development of safer and more effective therapies for cystic fibrosis.
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The content on CysticLife.org is not medical advice. Be sure to consult a medical professional when determining which course of treatment is best for you or your loved ones.