Introducing our Exercise Research Committee.
Next Step in Patient-Driven Research!
We are so blown away by the response we received from the community in scoring. There was an incredible response, and the community spoke loud and clear, giving us a clear “winner” to be studied.
The first research question we will study is: Can exercise effectively replace one session of a traditional airway clearance technique?
So what are next steps?
In order to tackle this topic specifically, we have assembled our Exercise Research Committee (ERC) that consists of some major rockstars in the field of exercise and CF.
- Frank J. Cerny, PhD
- Julie Desch
- Manu Kodiyan
- Mona Luke-Zeiton, MD
- John Mark, MD
- Peter Mogayzel, MD, PhD, MBA
- David Orenstein, MD, MA
- Ronnie Sharpe
- Courtney Wheatley, PhD
To learn a little bit more about each ERC member, hover over their profile picture. You can also read a more detailed bio on each member of the Exercise Research Committee HERE
How can I get involved?
We want to continue to hear from you. Here's how:
1) Send us an email
, use the feedback button CysticLife.org, send a smoke signal. We don’t care how you tell us, but give us your ideas regarding a study surrounding exercise and CF. We haven’t started designing the study, so your ideas can be incorporated into what we study and how we study it.
2) If you’re really fired up and have experience in this area, we would love to have you as a candidate for our Exercise Research Committee. Send your information to firstname.lastname@example.org
Keep up the great work CL!!
Score the Research Questions!
The CysticLife team is excited to announce our next stage of patient-driven research: scoring the research questions.
We asked the CL community to submit research ideas, and you responded to the call in a big way. The ideas were then narrowed down from a long list of suggestions into just 5 ideas based on feedback given by the CysticLife Research Advisory Board. The advisory board used a detailed rubric to make sure that we were only moving forward with ideas that were feasible for us to carry out. They also wanted to make sure that you scored research questions that can be effectively studied and will have an impact in the community.
So what’s next? We score the questions!
You will see the top 5 research questions on the right side of your screen. Click on the ‘score’ button under each research question title; read about the potential research; and then tell us if this is something you’re interested in. Voting 1 on a question means you’re not interested at all while voting 5 means that you’re very interested in the research. Obviously, 2 through 4 are somewhere in between.
After the scores are tallied, we will move onto the next phases of patient-driven research: patient-driven study design and patient-driven crowd funding.
Get ready to do something that has never been done in the cystic fibrosis community before!
Now go score the research questions!!